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With Veteran's Life In Peril, His Parents Take Up The Fight
Once in a while, he does have a bad day, Christine Schei says.
"But it's rare. And I think he doesn't want to show that side of him. He knows how hard it is to feed him, cut his fingernails, shave him," she says. "And he must say 10 times, 'I'm so sorry Mom. I'm so sorry,' because he knows that I have to change his diaper. And I know that's hard on him."
Gordon Schei worries about the future and their ability to care for their son as they get older (they are both in they're 50s now), but he once asked Erik if they had made the right decision.
"I'm alive," he responded. "And I'm glad I'm alive."
Audio produced for Weekend Edition by Yasmina Guerda.